Introduction — This topic includes links to society and government-sponsored guidelines from selected countries and regions around the world. We will update these links periodically; newer versions of some guidelines may be available on each society's website. Some societies may require users to log in to access their guidelines.
The recommendations in the following guidelines may vary from those that appear in UpToDate topic reviews. Readers who are looking for UpToDate topic reviews should use the UpToDate search box to find the relevant content.
International
United States
●American College of Medical Genetics and Genomics (ACMG): Standards and guidelines for clinical genetics laboratories – Technical standards and guidelines for Huntington disease (2014, reaffirmed 2021)
●American College of Radiology (ACR): ACR Appropriateness Criteria on movement disorders and neurodegenerative diseases (revised 2019)
●Huntington's Disease Society of America (HDSA): Genetic testing protocol for Huntington's disease (2016)
●HDSA: Understanding Behavior in Huntington's Disease – A Guide for Professionals, 2nd edition (2014)
●HDSA: A Physician's Guide to the Management of Huntington's Disease, 3rd edition (2011)
Europe
●EHDN: Guideline for oral healthcare of adults with Huntington's disease (2012)
●EHDN: Management of speech, language and communication difficulties in Huntington's disease (2012)
●EHDN: Nutritional management of individuals with Huntington's disease – Nutritional guidelines (2012)
●EHDN: Oral feeding in Huntington's disease – A guideline document for speech and language therapists (2012)
Japan
●[In Japanese] Japanese Society of Neurology (JSN): Genetic diagnosis guidelines for neurological disorders (2009)
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