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Society guideline links: Huntington disease

Society guideline links: Huntington disease

Introduction — This topic includes links to society and government-sponsored guidelines from selected countries and regions around the world. We will update these links periodically; newer versions of some guidelines may be available on each society's website. Some societies may require users to log in to access their guidelines.

The recommendations in the following guidelines may vary from those that appear in UpToDate topic reviews. Readers who are looking for UpToDate topic reviews should use the UpToDate search box to find the relevant content.

International

European Huntington's Disease Network (EHDN): International guidelines for the treatment of Huntington's disease (2019)

International Parkinson and Movement Disorder Society (MDS): Diagnostic criteria for Huntington's disease based on natural history (2014)

United States

American College of Medical Genetics and Genomics (ACMG): Standards and guidelines for clinical genetics laboratories – Technical standards and guidelines for Huntington disease (2014, reaffirmed 2021)

European Huntington's Disease Network (EHDN) and Huntington Study Group (HSG): Clinical recommendations to guide physical therapy practice for Huntington disease (2020)

American College of Radiology (ACR): ACR Appropriateness Criteria on movement disorders and neurodegenerative diseases (revised 2019)

EHDN and HSG: Clinical management of neuropsychiatric symptoms of Huntington disease – Expert-based consensus guidelines on agitation, anxiety, apathy, psychosis and sleep disorders (2018)

Huntington's Disease Society of America (HDSA): Genetic testing protocol for Huntington's disease (2016)

HDSA: Understanding Behavior in Huntington's Disease – A Guide for Professionals, 2nd edition (2014)

HDSA: A Physician's Guide to the Management of Huntington's Disease, 3rd edition (2011)

Europe

European Huntington's Disease Network (EHDN) and Huntington Study Group (HSG): Clinical recommendations to guide physical therapy practice for Huntington disease (2020)

EHDN and HSG: Clinical management of neuropsychiatric symptoms of Huntington disease – Expert-based consensus guidelines on agitation, anxiety, apathy, psychosis and sleep disorders (2018)

European Molecular Genetic Quality Network (EMQN)/Clinical Molecular Genetics Society (CMGS): Best practice guidelines for the molecular genetic testing of Huntington disease (2013)

European Federation of Neurological Societies (EFNS)-European Neurological Society (ENS): Guidelines on the diagnosis and management of disorders associated with dementia (2012)

EHDN: Guideline for oral healthcare of adults with Huntington's disease (2012)

EHDN: Management of speech, language and communication difficulties in Huntington's disease (2012)

EHDN: Nutritional management of individuals with Huntington's disease – Nutritional guidelines (2012)

EHDN: Oral feeding in Huntington's disease – A guideline document for speech and language therapists (2012)

EFNS: Guidelines on the molecular diagnosis of neurogenetic disorders – General issues, Huntington's disease, Parkinson's disease and dystonias (2009)

Japan

[In Japanese] Japanese Society of Neurology (JSN): Genetic diagnosis guidelines for neurological disorders (2009)

Topic 140090 Version 2.0

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