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Society guideline links: Porphyria

Society guideline links: Porphyria

Introduction — This topic includes links to society and government-sponsored guidelines from selected countries and regions around the world. We will update these links periodically; newer versions of some guidelines may be available on each society's website. Some societies may require users to log in to access their guidelines.

The recommendations in the following guidelines may vary from those that appear in UpToDate topic reviews. Readers who are looking for UpToDate topic reviews should use the UpToDate search box to find the relevant content.

Links to related guidelines are provided separately. (See "Society guideline links: Nontraumatic abdominal pain in adults" and "Society guideline links: Adult with altered mental status in the emergency department".)

United States

American Porphyria Foundation (APF): Emergency room guidelines for acute porphyrias

Porphyrias Consortium (PC) of the Rare Diseases Clinical Research Network (RDCRN): Acute hepatic porphyrias – Recommendations for evaluation and long-term management (2017)

American College of Physicians (ACP): Recommendations for the diagnosis and treatment of the acute porphyrias (2005)

United Kingdom

Association for Clinical Biochemistry and Laboratory Medicine (ACB): Best practice guidelines on first-line laboratory testing for porphyria (2017)

British and Irish Porphyria Network (BIPNET): Best practice guidelines on clinical management of acute attacks of porphyria and their complications (2013)

Topic 119744 Version 8.0