Introduction — This topic includes links to society and government-sponsored guidelines from selected countries and regions around the world. We will update these links periodically; newer versions of some guidelines may be available on each society's website. Some societies may require users to log in to access their guidelines.
The recommendations in the following guidelines may vary from those that appear in UpToDate topic reviews. Readers who are looking for UpToDate topic reviews should use the UpToDate search box to find the relevant content.
Links to related guidelines are provided separately. (See "Society guideline links: Congenital heart disease in adults" and "Society guideline links: Heart failure in children".)
International
●European Heart Rhythm Association (EHRA)/Heart Rhythm Society (HRS)/Asia Pacific Heart Rhythm Society (APHRS)/Latin American Heart Rhythm Society (LAHRS): Expert consensus statement on the state of genetic testing for cardiac diseases (2022)
●International Society for Heart and Lung Transplantation (ISHLT): Consensus statement for the selection and management of pediatric and congenital heart disease patients on ventricular assist devices (2021)
●American College of Cardiology (ACC)/American Heart Association (AHA)/American Society of Echocardiography (ASE)/HRS/International Society for Adult Congenital Heart Disease (ISACHD)/Society for Cardiovascular Angiography and Interventions (SCAI)/Society of Cardiovascular Computed Tomography (SCCT)/Society for Cardiovascular Magnetic Resonance (SCMR)/Society of Pediatric Echocardiography (SOPE): Appropriate use criteria for multimodality imaging during the follow-up care of patients with congenital heart disease (2020)
●International Society of Ultrasound in Obstetrics and Gynecology (ISUOG): Consensus statement on current understanding of the association of neurodevelopmental delay and congenital heart disease – Impact on prenatal counseling (2017)
●Pediatric and Congenital Electrophysiology Society (PACES)/HRS: Expert consensus statement on the use of catheter ablation in children and patients with congenital heart disease (2016)
●ASE, SCMR, and Society for Pediatric Radiology (SPR): Multimodality imaging guidelines for patients with repaired tetralogy of Fallot (2014)
●SCMR: Guidelines and protocols for cardiovascular magnetic resonance in children and adults with congenital heart disease (2013)
Canada
●Canadian Cardiovascular Society (CCS)/Canadian Pediatric Cardiology Association (CPCA): Position statement on pulse oximetry screening in newborns to enhance detection of critical congenital heart disease (2017)
●Canadian Paediatric Society (CPS): Practice point on pulse oximetry screening in newborns to enhance detection of critical congenital heart disease (2017)
United States
●American Society of Echocardiography (ASE): Guidelines and recommendations for performance of the fetal echocardiogram (2023)
●American College of Cardiology (ACC)/American Heart Association (AHA)/ASE/Heart Rhythm Society (HRS)/International Society for Adult Congenital Heart Disease (ISACHD)/Society for Cardiovascular Angiography and Interventions (SCAI)/Society of Cardiovascular Computed Tomography (SCCT)/Society for Cardiovascular Magnetic Resonance (SCMR)/Society of Pediatric Echocardiography (SOPE): Appropriate use criteria for multimodality imaging during the follow-up care of patients with congenital heart disease (2020)
●ASE: Guidelines for performing a comprehensive transesophageal echocardiographic examination in children and all patients with congenital heart disease (2019)
●AHA: A scientific statement on the genetic basis for congenital heart disease – Revisited (2018)
●American Academy of Pediatrics (AAP): Policy statement on the care of children with congenital heart disease in their primary medical home (2017)
●European Association of Cardiovascular Imaging (EACVI) and ASE: An expert consensus document on three-dimensional echocardiography in congenital heart disease (2017)
●AHA: A scientific statement on chronic heart failure in congenital heart disease (2016)
●AHA: A scientific statement on transplantation and mechanical circulatory support in congenital heart disease (2016)
●AHA: A scientific statement on eligibility and disqualification recommendations for competitive athletes with cardiovascular abnormalities – Task Force 4 (2015)
●SCCT: An expert consensus document on computed tomography imaging in patients with congenital heart disease – Part I: Rationale and utility (2015)
●SCCT: An expert consensus document on computed tomography imaging in patients with congenital heart disease – Part 2: Technical recommendations (2015)
●AHA: A scientific statement on diagnosis and treatment of fetal cardiac disease (2014)
●ASE, SCMR, and Society for Pediatric Radiology (SPR): Multimodality imaging guidelines for patients with repaired tetralogy of Fallot (2014)
●AHA: A scientific statement for prevention and treatment of thrombosis in pediatric and congenital heart disease (2013)
●AHA: A scientific statement on promotion of physical activity for children and adults with congenital heart disease (2013)
●AAP: Policy statement – Endorsement of Health and Human Services recommendation for pulse oximetry screening for critical congenital heart disease (2012)
●AHA: A scientific statement on neurodevelopmental outcomes in children with congenital heart disease – Evaluation and management (2012)
●AHA and AAP: A scientific statement on the role of pulse oximetry in examining newborns for congenital heart disease (2009)
Europe
●European Heart Rhythm Association (EHRA)/Heart Rhythm Society (HRS)/Asia Pacific Heart Rhythm Society (APHRS)/Latin American Heart Rhythm Society (LAHRS): Expert consensus statement on the state of genetic testing for cardiac diseases (2022)
●European Association of Preventive Cardiology (EAPC), the European Society of Cardiology (ESC), and the Association for European Paediatric and Congenital Cardiology (AEPC): Position statement recommendations for participation in competitive sport in adolescent and adult athletes with congenital heart disease (CHD) (2020)
●EHRA, AEPC, and ESC: A position paper on arrhythmias in congenital heart disease (2018)
●European Association of Cardiovascular Imaging (EACVI) and American Society of Echocardiography (ASE): An expert consensus document on three-dimensional echocardiography in congenital heart disease (2017)
●AEPC and EACVI: Expert consensus paper on indications for cardiovascular magnetic resonance in children with congenital and acquired heart disease (2015)
India
●Guidelines for the management of common congenital heart diseases in India – A consensus statement on indications and timing of intervention (2019)
Japan
●[In Japanese] Japanese Circulation Society (JCS)/Japanese College of Cardiology (JCC)/Japanese Society for Cardiovascular Surgery (JSCS)/Japanese Society for Vascular Surgery (JSVS)/Japanese Association for Thoracic Surgery (JATS): Guidelines for catheter treatment for congenital heart disease and structural heart disease of the heart and large blood vessels, revised edition (2021)
●[In Japanese] JCS: Guideline on the clinical examinations for decision making of diagnosis and drug therapy in pediatric patients with congenital heart disease and cardiovascular disorder, 2018 (published 2019)